The Canadian Scoliosis Screening Coalition
www.ScoliosisCanada.ca contact us by email: CSSC@scoliosiscanada.ca
Scoliosis Support & Resource Groups for Parents and Patients:
- Canadian Advocacy & non-profit Groups:
- Scoliosis Alberta founded in Edmonton, Alberta by patient, clinical and research community members, raises awareness for scoliosis, provides support and education to those affected by scoliosis and funds local research and collaborates with 'The Edmonton Scoliosis Interdisciplinary Research Group' from the University of Alberta Hospital. Shares patients stories, please read
Meet Ava and Kaeli's Story . Excellent, easy to navigate website with information on the importance of early-detection, screening, a brochure for parents and more. Has an associated Facebook support group.
- Scoliosis Resource Centre Founded in Ottawa, Ontario in 2008 by Schroth Physiotherapist Andrea Lebel (who was diagnosed with scoliosis as a child in Europe and treated successfully with Schroth PSSE, who own associated private physiotherapy clinic in Ottawa; Scoliosis Physiotherapy & Posture Centre ) and run by patient/parent volunteers. Offers peer support, guidance and provides free online educational resources, see Resources. Every June 1st in Ottawa they hold a Scoliosis Awareness event with a fund-raiser 'The Ottawa Annual Scoliosis Awareness walk' to raise awareness and funds for the local Children's Hospital CHEO (in the past successfully raised enough funds for a EOS low radiation x-ray machine for CHEO) . April 28/25 Website updated with current information and educational resources in easy to navigate grid presentation. Has an associated facebook group.
*** FREE Thursday Apr 2 2026 6:30 pm EST to 8 pm
Scoliosis and Posture Conditions, Online and In-Person, Information Night
"Join us for info night about scoliosis and posture— ask questions, and meet others in-person or Zoom, a link will be sent to you April 1st" "This is your chance to get the scoop, ask questions, and learn from experts in a friendly setting. Whether you or someone you know is affected, come and leave more informed... "
- Maritime Scoliosis Society Halifax, Nova Scotia, "Our Mission: Maritime Scoliosis Society (MSS) was founded to bridge gaps in scoliosis detection and care throughout Atlantic Canada. Building on the success of our signature charity golf event, Swing for Scoliosis, we are expanding beyond annual fundraising to lead initiatives that advocate for preventative care—reinstating school prescreening, ensuring equitable access to bracing for youth impacted by scoliosis, and strengthening collaboration with clinical partners. Our goal is to improve early detection, enhance access to treatment, and support ongoing community advocacy and research." -directly supporting the IWK Health Orthopaedic Department
- FOR PROFIT: Navigating Scoliosis, by Ontario chiropractor Dr. Derek Lee whose son was diagnosed with severe scoliosis and was treated surgically. Lee was inspired to create a business and extensive resource centre for virtual monitoring of scoliosis and much more.
- View for free
*** EXTENSIVE LIBRARY OF YOUTUBE VIDEO INTERVIEWS and WEBINARS with scoliosis experts
Educational interviews with Paediatric spine surgeons, Orthotists and physiotherapists by Ontario chiropractor Dr. Derek Lee.
- Online Scoliosis Support Groups for Canadian Youth:
scan QR code or click on link =>Scoliosis Common Grounds for Youth *** A Monthly virtual peer group for Canadian youth led by a certified Child-life-specialist, for youth aged 13+ who have a Scoliosis diagnosis. Meetings aided by a youth facilitator with lived-experience. An Upopolis initiative sponsored by the Canadian non-profit Kids Health Link Foundation. Link sends you to a 'Youth Self-Referral Application' Form for registration. An Upopolis team member will contact you to join Upopolis within a week and access the Common Ground meet-up. Peer group meetings held last Monday 7:15pm EST of every month. For boys and girls. (Recommended and endorsed by the Canadian Scoliosis Screening Coalition)
"I attended the Scoliosis Common Grounds meeting yesterday,
and it was great! It was so amazing to hear from others
and listen to their experiences. I will definitely continue
to attend and am looking forward to the next meeting."
- 01/27/26 teen youth Bianca
- Curvy Girls International Scoliosis Peer Support for Girls. Founded 2006 by Leah Stoltz. (Note: Scoliosis (AIS) occurs in both boys and girls and studies show more frequently in girls and but girls are 5-8X more likely to develop a curve during puberty requiring treatment).
- Scoliosis Resource Centre Founded in Ottawa, Ontario in 2008 by Schroth Physiotherapist Andrea Lebel (who was diagnosed with scoliosis as a child in Europe and treated successfully with Schroth PSSE, who own associated private physiotherapy clinic in Ottawa; Scoliosis Physiotherapy & Posture Centre ) and run by patient/parent volunteers. Offers peer support, guidance and provides free online educational resources, see Resources. Every June 1st in Ottawa they hold a Scoliosis Awareness event with a fund-raiser 'The Ottawa Annual Scoliosis Awareness walk' to raise awareness and funds for the local Children's Hospital CHEO (in the past successfully raised enough funds for a EOS low radiation x-ray machine for CHEO) . April 28/25 Website updated with current information and educational resources in easy to navigate grid presentation. Has an associated facebook group.
- Online Facebook Support & Resource Groups for Canadian Parents & Patients:
- Canadian Scoliosis Group
-public over 5K members (under 1K in 08/24), created 2008 “A support forum for Canadian's dealing with scoliosis (curvature of the spine) “
- Scoliosis Canada Parent Support Group (Private) - VBT, ApiFix, Fusion & ASC abroad created 2019 Private 735 Members “This group is designed for parents of children and teens living in Canada who are exploring non-fusion surgical options for moderate to severe scoliosis. It serves as a supportive community where parents can share information and connect with others facing similar challenges. Navigating the Canadian healthcare system can be overwhelming, as many parents are told that spinal fusion is the only option. Alternative treatments like Vertebral Body Tethering (VBT) and ApiFix exist but may not be discussed. This group aims to raise awareness of these non-fusion options and create a supportive, non-judgmental environment for parents to share experiences and seek guidance....”
- Schroth Best Practice Program for Scoliosis – Canada public 1.8K members, “This group was created to provide support for people with scoliosis who would like to seek conservative management of their condition using the Schroth Best Practice program....”
- Canadian Scoliosis private 1.8K Victoria BC est 2011 members For Canadians looking for Canadian information on Scoliosis, both young and old, whether you have scoliosis or are a parent, friend or educator of someone with scoliosis. As this is a private group, personal information and messages stays in this group. General information may be shared. Screenshots are not allowed, without prior permission.
- Dr. Derek Lee’s Ultimate Guide to Navigating Scoliosis Treatment/Research Private 4.4K members Toronto Canada, Dr. Lee is a chiropractor whose son was diagnosed with AIS. “This is a safe community for families & patients affected by scoliosis and the surgeons, and healthcare practitioners who treat them. We are bridging the scoliosis information gap between patients and healthcare experts. This is all about creating a carefully curated and trusted resource of science based conservative and surgical treatments for scoliosis. Here we have interviews with top spine surgeons, orthotists and healthcare practitioners from around the world to share the most recent, and most accurate information from frontline scoliosis experts.
- Scoliosis Alberta Support Group 523 members created 2016 “Our goal is to connect families affected by scoliosis and other spinal/back disorders, such as kyphosis, in order to build a support network to help each other through this challenging, and sometimes scary, journey.”
- Scoliosis Awareness Ottawa (Community Support Group) private group 58 members. This group has been created for scoliosis warriors and their supporters who are in the Eastern Ontario region.
- Scoliosis Canada Parent Support Group (Private) - VBT, ApiFix, Fusion & ASC abroad created 2019 Private 735 Members “This group is designed for parents of children and teens living in Canada who are exploring non-fusion surgical options for moderate to severe scoliosis. It serves as a supportive community where parents can share information and connect with others facing similar challenges. Navigating the Canadian healthcare system can be overwhelming, as many parents are told that spinal fusion is the only option. Alternative treatments like Vertebral Body Tethering (VBT) and ApiFix exist but may not be discussed. This group aims to raise awareness of these non-fusion options and create a supportive, non-judgmental environment for parents to share experiences and seek guidance....”
- Online Patient and Parent Stories:
- Patient Stories & Videos from the Scoliosis Research Society .
- Patient and Parent Stories including videos from SettingScoliosisStraight.org . A non-profit California US based organization of leading paediatric spine surgeons and health professionals.
- Patient and Parent Stories including videos from SettingScoliosisStraight.org . A non-profit California US based organization of leading paediatric spine surgeons and health professionals.
- Helpful videos for patients and families:
Scoliosis stories: What made you decide to have scoliosis surgery? Canadian teens and families share their stories. Video from The Hospital for Sick Children (Toronto Sickkids) Aboutkidshealth youtube channel.BRACING Overview by children sharing their experiences from the US non-profit Scolios-us . "The purpose of this video is to give you an honest look into scoliosis bracing from people who are living it..."- Scoli squad Podcasts from US Scolios-us, a series of
PODCASTS with mentor hosts and children/paediatric patients, on various topics from the journey of bracing, spinal fusion surgery, Bracing and Schroth, mental wellness and more.
Note, not reviewed by the CSSC.
Note, not reviewed by the CSSC. These first-hand stories are from trusted US based non-profit websites. Both parents and children may benefit from reading about other's patient's and parents experiences. The stories are predominately success stories after corrective scoliosis surgery.
For information also see Signs of Scoliosis (AIS) every Canadian Parent should look for. and scroll to the bottom for more links.